A Mother’s Worry

As I mentioned in a couple of posts my 16 year old, Jacob has been having cardiac tests. Their concern was that he had hypertrophic cardiomyopathy or HCM. This is a congenital condition of an extra thick heart muscle. The most common symptom of this undiagnosed condition is SCD or Sudden Cardiac Death! Great! Just what a mother wants to hear. The cardiologist helped some, he seemed to think that Jacob was just EXTRA healthy. Did I mention that he is a nationally competitive speed skater? He trains very extensively. That’s actually how we got him checked; his coach noticed that he got light headed frequently.

The cardiologist was pretty sure that he just had a super healthy heart and a strong vagal nerve. The vagal nerve is what controls our heart rate. We can learn to stimulate our vagal nerve through bio-feedback and breathing exercises. This would actually explain a lot. Through Jacob’s training we have had a hard time getting him to maintain a high heart rate. It seems as soon as he stops he heart rate returns to normal very quickly. He has actually had coaches not believe that he had skated his hardest when he could talk calmly within 1 minute.

Still the cardiologist wanted to do a stress test and an echocardiogram, just to check. The stress test seemed to show that he was good. They managed to increase his heart rate normally. Everything looked good. The echo would just confirm that everything was ok. Then we didn’t hear for almost two weeks!!!

Finally the call came, “we need to schedule an appointment to discuss abnormalities in his echo”. What? Jacob was leaving in two days to train for Indoor Nationals; he would be back for the Fourth of July, then gone again for more training and Outdoor Nationals until August. What “abnormalities”? Does this affect his training? His life? They had no answers and left a message for the doctor. He didn’t call back until the next day. THAT was a stressful 24 hours! Jacob has two congenital heart defects, a bicuspid aortic artery and a mitral valve prolapsed. Basically, one valve has only two flaps, when there should be three and the other valve has a floppy flap. The only time that these can be dangerous is in an un-healthy person. He may be more likely to have heart disease later in life if he doesn’t practice a healthy heart lifestyle.

All of the sudden God’s blessings became clear. Because he is an athlete we were able to discover this now AND he already lives that healthy lifestyle. He will probably always have a cardiologist to check on him on a regular basis. He may or may not need heart surgery as an old man but that is many, MANY years from now. So he is cleared for training as hard as he wants or I should say as hard as his coaches want and we will meet with the cardiologist in August to find out more details but for now, a mother’s worry is calmed!

I'm living on the eighth day, right now!